Will Social Security pay for complications of Tay-Sachs disease?

Yes. While the majority of patients who suffer from Tay-Sachs disease are diagnosed as infants, some people do not suffer symptoms until adulthood. Late-onset Tay-Sachs disease can have a number of effects, including muscle weakness, insomnia, speech problems, loss of coordination and balance, and increased likelihood of mental illness. Many patients find it difficult to move around and communicate effectively, making it extremely difficult for them to perform their jobs.

Applying for Disability Payments for Tay-Sachs and Other Congenital Problems

Tay-Sachs is a congenital disorder, meaning the disease has been present in your body since birth. Although you may have been born with the disease, it can take months or even years for symptoms to surface—and you will have to describe your specific symptoms carefully to the Social Security Administration in order to get your application approved. Other congenital disorders that may be paid for by Social Security include:

  • Trisomy X syndrome (XXX syndrome)
  • Fragile X syndrome
  • Phenylketonuria (PKU)
  • Caudal regression syndrome
  • Fetal alcohol syndrome

In order to get payment for your trips to the doctor or a medical facility, such as Bryan Medical Center in Lincoln, you will have to prove to the Social Security Administration that your symptoms are strong enough to prevent you from earning a living. This includes providing information about the parts of your body that are affected, the degree of disability you experience, your functional limitations, and a doctor’s estimation of how your disease is expected to progress.

We can help you prepare your application for submission so that you can get the benefits you need to pay your bills as quickly as possible. Call us at (402) 261 4005 or (402) 933-5400 or send us an email at [email protected] today to get all of your questions answered, or click the link on this page to order our free informational guide, Why You Should Hire an Attorney to Handle Your Social Security Disability Claim.

Sean D. Cuddigan
SSA and VA Disability Attorney in Omaha, Nebraska